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​What is a Natural History Study and Why Do they Matter?

 

Natural History Studies (NHS) are critical to the drug development process. Ciitizen has developed a new method to make this process easier. A next generation, digital NHS for CHD2-related disorders is expected to facilitate:

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• Informing clinical researchers how a disease changes over time

• Enabling better endpoint selection to use in clinical trials

• Understanding the connection between mutation types and symptoms 

• Reducing the time it takes to study new medicines in clinical trials

• Speeding up the time to get therapeutics to patients

• Using data as a placebo (instead of actual patients) in a clinical trial

 

How it Works

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• Participation is completely digital - No clinic visits required

• Collects participant's medical records from the institutions visited

• Data from medical records is organized and summarized, free of charge to the participant

• Participants retain full control of their health records

• With your consent, clinicians, researchers and biopharma can access anonymized data to aid in research

• Available now in the US with plans for worldwide availability

• Registering with Ciitizen requires less than 10 minutes of your time