In ultra-rare disease, it is often difficult to justify developing a new medication for just a handful of children and even more so if you don’t understand the disease.
Facebook Support Group
Support group for parents, caregivers, family members of children/youth/adults who are affected by a mutation/ deletion of the CHD2 gene.
Have you or your loved one been diagnosed with CHD2?Register here
One of the best things you can do is help educate others about CHD2-Related Neurodevelopmental Disorder. CHD2 Awareness Day is February 2 annually.See Events Page