Get Involved

In ultra-rare disease, it is often difficult to justify developing a new medication for just a handful of children and even more so if you don’t understand the disease.

Make a donation to help
find a cure for CHD2

Find opportunities to
volunteer

Get Involved

Facebook Support Group

Support group for parents, caregivers, family members of children/youth/adults who are affected by a mutation/ deletion of the CHD2 gene.

Raise Awareness

One of the best things you can do is help educate others about CHD2-Related Neurodevelopmental Disorder. CHD2 Awareness Day is February 2 annually.

See Events Page 
Host a Fundraiser

There are endless ways to host a fundraiser – from partnering with local businesses to creating your own personal fundraising event. Visit our fundraising page for ideas!

Fundraising Ideas 

Fundraising Teams