Living with CHD2?

Early intervention is crucial for individuals with CHD2

Living with CHD2 can be challenging for both the individual and their family. It is important for individuals with CHD2 to receive early and ongoing support from a team of healthcare professionals, including geneticists, neurologists, and occupational therapists.

Early intervention is crucial for individuals with CHD2. This may include speech and language therapy to help with language development, and occupational therapy to help with fine motor skills and coordination. Physical therapy may also be recommended to help with movement and balance.

As children with CHD2 grow and develop, they may need additional support in the form of special education services in school. This may include extra help with academics, as well as support for social and emotional development.

Families of individuals with CHD2 may also need support to cope with the challenges of caring for a loved one with a neurodevelopmental disorder. Support groups can be a great resource for connecting with other families who understand the unique challenges of CHD2.

It is important to note that the symptoms and severity of CHD2 can vary greatly from person to person, so individuals with CHD2 may have very different experiences. However, with the right support, individuals with CHD2 can lead fulfilling and meaningful lives.

CHD2 Heroes

Charlotte

Keep reading 
Robert

Last year, I wrote about my admission into a very exclusive, special-invitation-only parent group that will define the rest of my life.

Keep reading 
Sam

I was born on February 17, 2010 and I am super excited for my birthday! I remember when I was a baby, 15 months old, when I started having quick arm movements that I could not control.

Keep reading 

Keep up with CHD2!

Follow our social media for more
information and updates on
research for CHD2!