Coalition to Cure CHD2 is proud to announce that we will be partnering with RARE-X 

to build out a CHD2 Data Collection Program.


The purpose of this Data Collection Program is to provide de-identified patient data to researchers working on treatments for CHD2 and other rare diseases.


In early Summer 2021, we will roll out the CHD2 Data Collection Program to our community of families for participation.

Further information will be forthcoming. To learn more about RARE-X, please visit

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