About Us

Coalition to Cure CHD2 is a 100% volunteer-run organization fueled by our desire to help our children & others with CHD2-related disorders.

Our Mission is to improve the lives of those affected by CHD2-related disorders by funding research necessary for uncovering a cure.

Our Vision is to find safe and effective treatments that will cure CHD2-related disorders.

Board of Directors

Meet CCC's Board of Directors. Coalition to Cure CHD2 is a 100% volunteer-run organization fueled by our desire to help our children & others with CHD2-related disorders.

Meet Our Board of Directors 
Scientific Advisory Board

The Scientific Advisory Board’s role is to advise CCC’s board of directors on strategic initiatives that support the mission of CCC. Led by Dr. Gemma Carvill, the SAB is comprised of leading scientists and clinicians around the United States. Their duties include reviewing and advising research grant applications and proposals, meeting annually to discuss the landscape of CHD2 research, and providing expert opinions about the direction of CCC's research program. We gratefully acknowledge their time and dedication to CCC's mission.

Learn More About Our Scientific Advisory Board 
CCC Partners

CCC is proud to partner with organizations that bring much needed resources to families living with CHD2-related disorders. These collaborations strive to exemplify the need for awareness and education in order to discover better and faster treatments for patients. We are grateful for our partners who value the services that align with our mission.

View Our Partners